Potters syndrome
As a parent who has lost his first child due to Potters syndrome, it would be great to have a event to not only raise awareness of this terrible condition but also work towards funding and research. There is no cure, and in all cases the condition ends in death. Potters syndrome is typically diagnosed around 28 weeks and is caused by the bladder and kidneys not attaching themselves. Such a case makes it impossible for the baby to develop properly, as no amniotic fluid can be made, to give the baby space inside to grow and more importantly, to help the babys lungs get strong enough to fill with air on their own. We had baby Jameson on January 29th 2017 and after roughly 2 hours he passed away.
bakedpotato_420_
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Hi,
Sorry for your loss. We hope you feel empowered to raise awareness and raise funds towards research for Potters Syndrome by hosting a charity stream on behalf of the charity of your choice. The charity tool is fully integrated with the PayPal Giving Fund. If you are not seeing the charity you'd like to use for your awareness and fundraising stream, please reach out to the organization about registering with the PayPal Giving Fund. You can learn more about how to sign up your charity here: https://help.twitch.tv/s/article/twitch-charity-charities. For more information on Twitch's charity tool, please feel free to access our FAQ Help Article: https://help.twitch.tv/s/article/twitch-charity-faqs. Thank you for your understanding.