Stiff Person Syndrome Research Foundation
Please add this organization to the list of charities we can fundraise for! While there is no cure yet, helping fund the research can help people in the future.
"Stiff person syndrome (SPS) is a neurological disease with autoimmune features. Symptoms include muscle spasms, hyper-rigidity, debilitating pain, and chronic anxiety. Muscle spasms can be so violent they can dislocate joints and even break bones.
SPS is labeled as a rare disease. But more people are affected than reported due to misdiagnoses. It takes on average seven years to identify. It is often mistaken as Multiple Sclerosis, Parkinson’s, Fibromyalgia, Psychosomatic Illness, Anxiety, Phobia, and other autoimmune diseases.
Patients can be disabled, require a wheelchair, or become bed-ridden — unable to work and care for themselves."
AltyAlta
shared this idea
Hi, we appreciate you taking the time to suggest this; however we wanted to let you know that the process for getting a charity added to the Twitch Charity Tool has changed. As a result, we will be closing out further requests submitted to UserVoice for certain charities to be added. At this time, the charity tool is fully integrated with the PayPal Giving Fund; so if this charity is registered there, you should already find it to start a fundraising campaign. In the case you find it does not appear in the charity tool, please reach out to the organization regarding registration with the PayPal Giving Fund. You can learn more about how to sign up your charity here: https://help.twitch.tv/s/article/twitch-charity-charities. For more information on Twitch's Charity Tool, please feel free to access our FAQ Help Article: https://help.twitch.tv/s/article/twitch-charity-faqs. Thank you for your understanding.