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The Ehlers-Danlos Society

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.

Admin edit: https://www.ehlers-danlos.com/

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shadychama shared this idea  ·   ·  Report…  ·  Admin →
Completed  ·  AdminAna (Admin, Twitch) responded  · 

Hey all!

Just in time for Giving Tuesday next week, Twitch’s charity tool is powering up to bring thousands of new charities. Charity streams bring out the best in everyone, bonding the community through generosity. 

We launched the charity tool to help you support the causes you care about, and we're happy to announce that we have added the Ehlers-Danlos Society to our list of charities. To learn more about Charity on Twitch, check out https://link.twitch.tv/TwitchCharity.

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  • Extra_Precaution commented  ·   ·  Report

    PLEASE PLEASE PLEASE! There's no cure. There isn't even a race for the cure. Lol.
    I have ehlers-danlos and it is excruciating. It takes way too long to diagnose because we are "medical zebras". It's under-studied, so most doctors don't even think about it.

  • ZaidCL commented  ·   ·  Report

    Please add this to help create awareness of Ehlers-Danlos syndromes

  • TakeOnMike commented  ·   ·  Report

    Please add this! There is virtually no awareness in the country of this condition

  • Wattchit commented  ·   ·  Report

    I'd really appreciate if this could be added!

  • CandyRages556 commented  ·   ·  Report

    As someone with a rare form of EDS I would love to see that this be one of the charities that we can donate to on the platform. There are so many people who have EDS that don't even know it. I have helped countless people get diagnosed.

  • Calavera_VT commented  ·   ·  Report

    I know of several people that have this condition, besides it being rough on a person another problem that stems from it is how little the general public knows about it, which makes life harder for anyone with EDS.
    Please include this to the twitch charity system so we can help those afflicted.

  • solboons commented  ·   ·  Report

    EDS is a horrible disease. Thank you for bringing attention to it.