Diamond Blackfan Anemia Foundation
Diamond-Blackfan anemia is an inherited blood disorder that affects the ability of the bone marrow to produce red blood cells.
The Diamond Blackfan Anemia Foundation, Inc. (DBAF), founded in 1994, has adopted the following mission statement: “to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to patient advocacy and providing support and education services to individuals, families and medical professionals resulting in improvements in the diagnosis, clinical treatment and management of the disorder, while enhancing the quality of life of affected families worldwide.”
The DBAF is a 501(c)(3) not-for-profit corporation registered with the Charities Bureau of New York State Department of Law, 120 Broadway, New York, New York 10271.
The DBAF funds medical research projects which directly or indirectly benefit DBA patients and which are approved by the DBAF’s medical/scientific advisory board comprised of medical doctors and scientists. The DBAF organizes meetings which bring together DBA patients, families, and world-renowned physicians. The DBAF provides informational literature to patients, DBA family members, health care professionals and other interested parties. The DBAF networks DBA families throughout the United States, Canada, and worldwide. The DBAF publishes a monthly e-newsletter containing personal DBA stories, DBA clinical trial information, current research, and DBA activities.
Admin edit: https://dbafoundation.org/
We wanted to let you all know that the process for getting a charity added to the Twitch Charity Tool has changed, because of this, we will be closing out these requests. At this time, the charity tool is fully integrated with the PayPal Giving Fund; so if your charity is registered there, you can already find it to start a fundraising campaign. In the case you find your charity appears to be missing from the tool, please reach out to the organization regarding registering with the PayPal Giving Fund.
You can learn more about how to sign up your charity here: https://help.twitch.tv/s/article/twitch-charity-charities. For more information on Twitch’s Charity Tool, please feel free to access our FAQ Help Article: https://help.twitch.tv/s/article/twitch-charity-faqs.
While we normally respond to each idea on UserVoice individually, as a result of the volume of requests and the scope of this change, we will be mass responding to let the community know. Apologies if you have shown support for multiple charities and are receiving more than one email update for this adjustment.
Thank you all for giving us your feedback and for sharing your passion for your charities with Twitch!